This content was funded by Ipsen.
This is an Ipsen Biopharmaceuticals Inc. sponsored Symposium and is intended for healthcare professionals only. This video discusses PBC, different aspects surrounding its care, and presents data from late phase investigational treatments for PBC.
An Ipsen symposium presented at European Association for the Study of Liver (EASL) 2024, June 6th, Milan, Italy.
The key to personalized care for patients with primary biliary cholangitis (PBC) starts with good and effective dialogue between the patient and their treating physician. Whilst short appointment times cannot be changed, reviewing the patient holistically (in terms of disease state and symptom impact) can help achieve better outcomes for people living with PBC.
A holistic approach to consultations should include:
- Evaluation of the patient’s current disease state and risk profile
- Discussion of the challenges the patient faces and alignment of treatment goals
- Shared decision making and co-creation of a care plan
At the European Association for the Study of the Liver (EASL) 2024 International Congress, Mark Swain (University of Calgary, Canada), Emma Culver (John Radcliffe Hospital, Oxford, UK), and Marco Carbone (University of Milano-Bicocca, Milan, Italy) held a simulation of a clinical appointment with an actor (representing a person living with PBC) to highlight the current challenges faced in the clinic. Possible adaptations to the clinical appointment were then discussed. A forward-facing perspective was then taken to present data from late phase trials on treatments for PBC, and discuss how care may change as these treatments become available.
In addition to the symposium, expert speaker deep-dive talks were held at the Ipsen medical booth. These short, interactive talks gave attendees the opportunity to further understand the rich and evolving PBC landscape.
Bettina Hansen (ERASMUS University Medical Center, Rotterdam, the Netherlands) and María-Carlota Londoño (Hospital Clinic of Barcelona, Spain) presented an overview of real-world data sources and how it can be used in combination with clinical trial data to create a more complete image of diseases/treatment impact.
Andreas Kremer (University Hospital Zurich, Switzerland) with virtual participation from David Jones (Newcastle University, UK) highlighted the value of patient-reported outcome measures and how they could be adapted for more regular use in clinical practice.
Robert G Gish (Consultants LLC, San Diego, California, USA) and Douglas Thorburn (University College London, UK) presented the history of PBC and how the philosophy behind caring for people with PBC needs to evolve to provide the best possible outcomes.
Set As Many People Living With PBC on the Right Route
Watch the following video to spot the signs, map the route, and lead the way to personalized PBC care.
Job code: ELA-ALL-001334
Date of prep: August 2024
