Tune into the latest EMJ Webinar, featuring five key members of the European Association for Haemophilia and Allied Disorders (EAHAD), who join Jonathan Sackier to discuss the EAHAD’s mission, aims, and key projects for the coming year.
Themes covered include:
- Gene Therapy Clinical Database
- Coagulation Factor Variant Database
- Unique challenges facing women and girls with bleeding disorders
- The significance of advocacy
- EAHAD’s mission, current projects, and future goals
Timestamps:
- 00:00 – Introduction
- 03:38 – EAHAD’s mission
- 09:15 – EAHAD’s strategies to ensure high-quality clinical care for patients across Europe
- 16:03 – Examples of current EAHAD projects
- 18:22 – Gene Therapy Clinical Database
- 20:44 – Coagulation Factor Variant Database
- 22:58 – Unique challenges facing women and girls with bleeding disorders
- 28:37 – The significance of advocacy
- 36:04 – EAHAD’s biggest goals for the future
- 37:32 – EAHAD Academy platform
- 41:13 – The importance of collaboration across disciplines
- 45:25 – Final takeaways
Speakers
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| Jan Blatný President, European Association for Haemophilia and Allied Disorders; Associate Professor of Paediatrics, Masaryk University and Children’s University Hospital, Brno, Czechia |
Niamh O’Connell Consultant Haematologist, National Coagulation Centre, St James’s Hospital, Ireland |
Wolfgang Miesbach Professor of Medicine, Frankfurt University Hospital, Germany |
Ana Boban Head of Haemophilia Centre, University Hospital Centre Zagreb, Croatia |
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| Robert Klamroth Director of the Comprehensive Care Haemophilia Treatment Center, Vivantes Hospital, Friedrichshain, Germany |
