A STUDY exploring parents’ experiences of managing preschool wheeze has revealed significant challenges in diagnosis, treatment, and healthcare access. The research, which involved semi-structured interviews with 16 parents from 14 families across England and Wales, highlighted the difficulties families face in dealing with this common respiratory condition in children aged 1–5 years.
The findings indicate that preschool wheeze has a profound impact on families, creating high levels of worry and restricting parents’ ability to work and travel. One of the key concerns raised was the inconsistent terminology used by healthcare professionals, which contributes to diagnostic uncertainty and confusion about treatment options. Parents reported feeling frustrated by the lack of clarity and guidance, making it harder to manage their child’s condition effectively.
Medication management was another major challenge. Many parents expressed concerns about the long-term use of medications, particularly regarding potential side effects. Additionally, delayed investigations and difficulties in accessing specialist care were identified as barriers to appropriate treatment. Parents felt that timely investigations could provide clearer treatment pathways, reducing uncertainty and improving outcomes.
Living with preschool wheeze posed daily struggles for families, from disrupted sleep to restrictions on activities. The condition’s unpredictable nature added to parental stress, with many feeling they lacked adequate support from healthcare providers. Improved education and management support were suggested as essential to helping families navigate the condition more effectively.
The study underscores the urgent need for a more unified approach to preschool wheeze diagnosis and treatment. Parents strongly supported the use of investigations to guide treatment pathways and improve care. To enhance outcomes, there must be consistent terminology, clearer diagnostic criteria, and better training for healthcare professionals in both primary and secondary care. Addressing these issues could improve the management of preschool wheeze, reduce parental anxiety, and enhance the quality of life for affected families.
Katie Wright, EMJ
Reference
Mohammed Abdul Wajid L et al. Managing preschool wheeze: a qualitative study of parents’ views and experiences. Arch Dis Child. 2024;DOI:10.1136/archdischild-2024-327781.